The First Appointment

After getting my results from the ultrasound, my doctor told me to find myself an ENT (Ears, Nose, and Throat) doctor also known as Otolaryngology to find out what the next stop was, though I would soon find out that would take awhile.  Originally my family doctor told me to go to one ENT group from the area, but I had gone to them a year prior, but was not impressed by them.  So I went to search for a new one and I never knew how hard it would be to find a decent specialist in my area.  I also learned it would be hard to get in fast until now.

I spent at least two full days searching online for an ENT nearby that had good reviews.  I didn't want to find another doctor that didn't listen to me and told me nothing was wrong (I had this happen to me many times including a time when I had a cyst the size of a softball in my back).  I called UC Hospital for an appointment with one of their ENTs, but sadly my first choice would have been a two month wait.  I told the one over the phone I couldn't wait since I was having issues breathing, swallowing, four nodules, and a slightly enlarged thyroid.  Luckily I was able to get an appointment with my second choice three weeks later on August 27th.

For three weeks I kept researching online what could be wrong with me...  I have an aunt with Hashimoto's and we thought maybe I had that, so I kept cross referencing with her symptoms and mine as well as what I found on the internet.  I don't know why, but I had a feeling to look into Thyroid Cancer and their symptoms, it just kept drawing me in.  My family and my boyfriend all told me that it's probably not that and not to worry about it too much.  Though eventually my mom and I agreed it wouldn't hurt to know to just prepare myself.  I didn't wanna go dramatic if my doctor told me the news and I could think straight to ask him any questions I had.

The first day I went to see my doctor I was surprised  how young he was, probably a few years older than me.  He asked what was going on and I told him, I also had the ultrasound report with me.  Of course, he asked if there were any thyroid issues in the family and I told him about my aunt.  Then he asked about cancer of the gland and the answer was no, but I did warn him that anyone that cancer in my family are the first ones of that type.  He did a fine-needle biopsy on the largest nodule stabbing my neck four times, the last two being the worse.  He also wanted to run blood tests on me to see what my levels were like and then do a barium swallow test and an endoscopy because of my swallowing issue. I've been having the issue with the swallowing most of my life, so he thought this could be something different from the nodules and the breathing issue.

Now began the waiting game and the testing phase of this whole thing...

Something's Wrong

My journey all started when the last weekend of July 2012 when I was having difficulty breathing for the first time in my life.  It was hard to describe as I knew it wasn't a chest/lung issue, but something blocking in my neck.  Also I was having more difficulties with swallowing food and liquids, but I've had that issue more of my life.  Well actually the difficulty with liquids, even water, started about five years ago and anytime I experience it, it felt like the liquid in question formed into a marble, which made me refer to it now as the "marble effect".

Anyways, the breathing issue was driving me insane... like drowning and trying to swim to the surface, but unable to since *thinks* a log  has trapped your leg.  You are fighting to breathe, but unable to push the log off, so you can get free.  I finally decided to call my doctor, but wasn't able to get in until later in the week and the breathing got worse as time went on that day, so my boyfriend took me to the hospital.  They checked my chest by listening to it, ran blood test claiming they were checking my thyroid with the testing as well, and then x-ray my neck since I found a large lump on my neck (I noticed this while we were driving to the hospital).  At first the one doctor said that might be normal for me, but I told him it wasn't and that it was new.  They gave me a breathe therapy treatment where you breathe in this vapors from a hose connected to a machine... yeah, it didn't help at all.  They said everything came back fine, but I should ask my family doctor to order an ultrasound on my neck.

I ended up getting an appointment with my family doctor on August 3rd, 2012 in the morning and told her what happened at the hospital and what I was dealing with.  She gave me two options: one, to do the ultrasound or two, to see if my esophagus needed to be widen.  I, of course, voted for the ultrasound and was able to go to the town over to get it done the same day.  A week later I got the email from my doctor that the left side of my thyroid was enlarged with a nodule that was an inch in size and three smaller (5mm, 7mm, and 9mm) nodules on the right with all different makes.

Now let me tell you, 90% of people have nodules and most are not noticeable and aren't cancerous (and not all will become cancerous).  But if you have one that's 1 cm in size, you need to get an ENT to do a fine-needle biopsy.  Also if you have a nodule, even if it's small, get it checked every once in a while... like every six months (you can get your family doctor to order the ultrasound for you... it's cheaper that way).  If it gets bigger in size get an ENT to look at it.  To note, my largest nodule was 2.5 cm when I found it.

This was just the beginning of a major change in my life.